Monday, January 11, 2010

Four steps forward, three back

The scorecard for the past week is positive. However, Thursday through Sunday was miserable for Mary.

A week ago Sunday was good, with Mary going to Market and having lunch at the Purple Onion. Tuesday was also good and Mary went to her monthly book club meeting. I drove her to the meeting and MaryR brought her home. MaryR is a member of the club and she lives close to us so that made it easy. Wednesday, Mary, Ingrid and Maurice went out on for lunch and took the dogs along for a walk because it was Maids day.

Thursday was good but quiet for Mary. Friday, Saturday and Sunday were hellish. Pain, unable to hold her meals, more pain, little interest in food/eating and generally feeling awful. Frankly, it was not a good time.

Last night we swapped out the fentanyl patches again--days early. Why? Well, the problem started when we put the patches on her back according to the rotation recommended on the instructions. Every three days we put on new patches and they have been located on the upper arm left and right, upper chest left and right and back left and right. We now know the patches mounted on her back didn't deliver enough pain killer, and the increased pain caused much of the problem with her appetite and ability to hold food.

For example, Mary was waking up very early Fri, Sat and Sun due to stomach discomfort and back pain. With the relocated patches, she slept through all night long last night and was feeling pretty good overall when she woke this morning. It is amazing how a simple thing like location of the patch can have such a major impact on the effectiveness of the medication.

Someone asked about the "Wow" video. One of Mary's college buddies sent us a link and he was the featured person in the video. I read the last screen and followed the instructions and voila! Mary was featured in the video!

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